Family Comfort Kits
CACNA1A-related disorders cause a lot of hospitalizations. Addilynn has been hospitalized for more days than we can count...Including four stays due to life-threatening neurological events. We have developed a list of our favorite items and put them together for a Family Comfort Kit. We deliver these to the pediatric floors of local hospitals. In the fall of 2023, we are will be adding sponsoring a Family/Staff Meal on the pediatric floors of local hospitals. Stay tuned for more details!
Click below to find our Amazon Wish List!