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Family Comfort Kits

CACNA1A-related disorders cause a lot of hospitalizations. Addilynn has been hospitalized for more days than we can count...Including four stays due to life-threatening neurological events.  We have developed a list of our favorite items and put them together for a Family Comfort Kit.  We deliver these to the pediatric floors of local hospitals.  In the fall of 2023, we are will be adding sponsoring a Family/Staff Meal on the pediatric floors of local hospitals.  Stay tuned for more details!

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Click below to find our Amazon Wish List!

ABOUT US 

Addilynn's Bee-lievers is a 501(c)3 nonprofit that has a mission to 

CONQUER CACNA1A  & CARE FOR OTHERS!

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We do this by

  • spreading awareness & supporting organizations facilitating research for a treatment or a cure for CACNA1A-related disorders

  •  providing Family Comfort Kits to families in local hospitals

  • providing outpatient therapy scholarships to families to help with out-of-pocket costs for therapy

  • providing adaptive equipment grants to help with out-of-pocket costs for this life-enhancing equipment

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CONTACT

T: 701-595-4386

E: info@addilynnsbeelievers.org

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