About Us

We are all united under the common goal to Conquer CACNA1A and Care for Others.  We spread awareness for CACNA1A-related disorders and support organizations facilitating research for a treatment or cure.  Our We Bee-lieve Grant assists families with out-of-pocket costs for physical therapy, occupational therapy, speech therapy and adaptive equipment.  We deliver Family Comfort Kits to families on the pediatric floors of local hospitals.  We have a goal to partner with local restaurants to provide family meals to the pediatric floors of local hospitals during the second half of 2023.