The Road from Undiagnosed to CACNA1A

The road from undiagnosed to a rare CACNA1A variant is long and winding.  For this part of Addilynn's story, we provide a chronological overview of how having a CACNA1A variant became part of our lives and the events it has caused.  Because this story is long and winding, Addilynn's story will also be broken into segments that you can read about each specific piece of her story...subscribe below or follow our social media pages to stay updated when we expand her story.